We called the OR and they were just about to place the first implant. Her vitals are good and all is going well. They started at 4:15 so as I suspected, it will be a late night. Will keep you posted...
Ugh. The waiting. I think I must have done 500 Sudoku games. I hope there's good tv at least??? What am I saying - there's never good tv at the hospital. I always feel the same way - she has no idea what's in store for her. So weird...
Thinking about you guys! Glad you didn't get bumped, but sorry you will have such a long night. I hope everything goes well - keep us updated!
Luke didn't have his LTR today, just a nasal dilation. But he is doing well - just like with Ainsley nothing is ever simple with my kiddo. I posted all about it on his blog if you have time to look.
I am a very happy twelve year old. I have learned to explore and navigate this world in my own special way. I've been through more in my short time than most people ever will in their entire life but that doesn't get me down. If I like you I just might flash you a smile that will melt your heart.
I am Ainsley's mom and the author of this blog. I am also mom to Ainsley's big sister Evie and brother Adrian. Normal life seemed busy and challenging enough before Ainsley came around in 2006. Managing the care of a medically complex special needs child is something I never imaged yet together as a family somehow we do and life is good.
Now days it seems everyone has a blog so perhaps sharing personal details of your life over the Internet no longer needs explanation, yet I will. Ainsley's blog was created in March 2008 in preparation for a medical trip to Cincinnati, OH. At that time many families like ours used services like CaringBridge to help friends and families stay up to date on the status child's health. Instead we chose the blog format and are so glad we did. In addition to being a way to share information with our friends and family it has served as a sort of diary of our experiences. There are many times that I refer back to it for information about a surgery or procedure, or forgotten details about something that happened or to just to simply find a date. Over the years I've had parents contact me to say that the blog has been helpful to them in one way or another and that means a lot to me. Like me, many parents of medically complex kids are looking for information on how best to help their child, especially in the early years. Sharing our stories helps.
My thoughts and prayers are with your family Susan.
ReplyDeleteAinsley is beautiful before the surgery and she will be beautiful after the surgery.
Hugs,
Lisa
Ugh. The waiting. I think I must have done 500 Sudoku games. I hope there's good tv at least??? What am I saying - there's never good tv at the hospital. I always feel the same way - she has no idea what's in store for her. So weird...
ReplyDeleteKnow we're here - thinking of you.
~Christy
Thinking about you guys! Glad you didn't get bumped, but sorry you will have such a long night. I hope everything goes well - keep us updated!
ReplyDeleteLuke didn't have his LTR today, just a nasal dilation. But he is doing well - just like with Ainsley nothing is ever simple with my kiddo. I posted all about it on his blog if you have time to look.
I've been waiting for an update all day. Glad things are finally underway.
ReplyDelete