YES WE DO!
Interpretation : "What the hell are you doing to me? Do you REALLY think you can fool me into thinking that's an "elephant mask". Are you people crazy?
Yep. This should be FUN.
But it's necessary. Ainsley can do well without the trach but without it we know she would have obstructive sleep apnea so we are trying CPAP (with her cap on) while she sleeps. If she can use CPAP successfully at home then we should be able to move forward to attempt decannulation when the time is right (likely after she has eyelid reconstruction surgery, sometime in the spring).
Key word: IF
She's going to need the CPAP or the trach. We'd prefer CPAP.
Today our DME brought the machine and we tried some different masks. I wore it and pretended to be an elephant. "Oh isn't this fun Ainsley?". At first she let us try it on her. Then she cried. She wasn't fooled.
I didn't even attempt to turn the machine on while she wore it. But I tried it myself. It's not pleasant all that air rushing up your nose. We'll see how things go but I'm anticipating this is going to take some time and will be a difficult adjustment. I'll let you all know how it goes. She's had a harder time wearing her cap because she had a slight cold last week so we'll wait a few days before trying it out for real. For the next few days we'll be simply working on "mask desensitization".